Privacy Policy

May 18, 2022 

Myrtelle and its affiliates (collectively, “Myrtelle, Inc ” “our,” “us,” or “we”) operate certain websites, including https://canavantreatment.com (collectively, the “sites”). Myrtelle is a gene therapy company whose mission is to transform the treatment of neurological diseases. We recognize the importance of protecting the privacy of our online visitors and so we have created this privacy policy to inform you about how we collect, use and share the information we collect on the sites.

This privacy policy applies to the site on which we display or post a direct link to this privacy policy. This privacy policy does not apply to those sites and services that do not display or link to this privacy policy, or that have their own privacy policies. 

By using our sites and services, you expressly consent to our collection, use, disclosure, and retention of your personal information as described in this privacy policy. Each time you use our sites, the current version of this privacy policy will apply. If you do not agree to this privacy policy, please do not use our sites.

What Personal Information We Collect 

Personal Information that You Provide to Us

Personal information is information that can be used to identify, locate, or contact an individual, and includes other information that may be associated with personal information. When you interact with our sites, we may collect the following personal information directly from you:

1. Contact Information, which generally includes your name, addresses, email addresses, and/or telephone numbers;
2. The name of any individual patient on whose behalf an inquiry may be submitted

In each of the above instances, you will know what personal information we collect through our sites and services because you voluntarily and directly provide it to us.

Other Information We Automatically Collect through Cookies and Other Technologies

We or our third-party service providers may collect and store certain technical information when you use our sites. For example, while you are browsing our sites, information about your computer and browser may be automatically collected through the use of cookies or other automated data collection technologies, including, your IP address, browser type, domain name from which you accessed the site or service, device size and other software or hardware information. If you access our sites and services from a mobile or other device, we may collect a unique device identifier assigned to that device (UDID), type of device, general GPS location, or other transactional information for that device in order to serve content to it and to improve your experience in using the sites or services.

In addition, we or our third-party service providers may collect information about how you use our sites, including but not limited to, the date and time you visit the sites, the areas or pages of the sites that you visit, the amount of time you spend viewing the sites, the number of times you return to the sites, visits to sites outside our network, preferred language, and other click-stream data.

Cookies

We or our third-party service providers may use cookies and other tracking technologies (including browser cookies, pixels, beacons, mobile application identifiers, and Adobe Flash technology) to help us recognize you across different sites and services, improve your experience, increase security, measure use and effectiveness of our services, and serve advertising. We currently utilize Google Analytics to help analyze how visitors use the sites. If you would like to opt-out from the use of your information by Google Analytics, you may use Google’s analytics opt-out browser add-on designed for this purpose. You can also control cookies through your browser settings and other tools. 

By visiting our sites and services, you consent to the placement of cookies and beacons in your browser and HTML-based emails in accordance with this privacy policy.

How We Use Personal Information

We may use the personal information that you provide in one or more of the following ways:

1. to respond to your inquiries or comply with your requests;
2. to enable site features, remember you when you return to our sites, understand and analyze trends, to monitor usage, and learn about user behavior;
3. to send you important notices, such as communications about or products and services, including information about our clinical trials, and our sites’ and services’ terms, conditions, or policies;
4. to solicit input and feedback to improve our sites and services and customize your user experience;
5. to meet contractual obligations;
6. to promote our brand or clinical trials in search results;
7. to provide customer service and technical support;
8. to prevent fraud or potentially illegal activities, enforce our sites ‘Terms of Use’ or to comply with applicable law;
9. for internal purposes such as auditing, data analysis, and research to improve our products, services, and communications;
10. 10.to run (or authorize third parties to run) statistical research on individual or aggregate trends.

In addition to the uses described above, we may use personal information that we collect for other purposes that are disclosed to you at the time we collect the information, or with your consent. We may use non-personally identifiable information for any lawful purpose without restriction.

How We Share Information

We may share your personal information with third parties in the following circumstances:

1. when we engage third parties to perform services on our behalf, such services include maintenance, hosting, data storage, security, analytics and data analysis, payment processing, marketing, email and text message distribution, customer service, and surveys;
2. when you provide contact information in response to an inquiry about a clinical trial, we may share your information with clinical trial investigators and others involved in management and operation of the clinical trial;
3. where necessary to operate our sites and services, your personal information and the contents of all of your online communications on or through our sites and services may be accessed and monitored to satisfy any applicable laws or regulations and to defend ourselves in litigation or regulatory action;
4. in order to protect the rights or property of Myrtelle and our subsidiaries and corporate affiliates, including to enforce our sites’ or services’ Terms of Use;
5. when we have a good faith belief that we are required to disclose the information in response to legal process (for example, a subpoena, court order, or search warrant);
6. where we believe our sites and services are being used in the commission of a crime, including to report such criminal activity or to exchange information with other companies and organizations for the purposes of fraud protection and risk management; 
7. when we have a good faith belief that there is an emergency that poses a threat to the health and/or safety of you, another person, or the public generally;
8. in the event of a merger, acquisition, debt financing, restructure, sale of Myrtelle’s assets by or with another company, or a similar corporate transaction, we may need to disclose and transfer all information about you, including personal information, to the successor company;
9. we may share information about you with Myrtelle’s subsidiaries and affiliates and companies acquired by or merged with Myrtelle and its affiliates;
10. 10.when you register to use a service co-branded by Myrtelle and other companies with which we partner, we may share the personal information you provide with such companies; in this instance, both our privacy policy and the partner’s privacy policy will apply.

We may share personal information about you for any other purpose(s) disclosed to you at the time we collect your information or with your consent.

Security and Storing Personal Information

We use reasonable security measures designed to prevent unauthorized intrusion to the sites and the alteration, acquisition or misuse of personal information. However, the security of information that you transmit cannot be guaranteed. We retain your personal information for as long as needed to fulfill the purpose for which it was collected. Additionally, we may retain personal information if retention is reasonably necessary to comply with our legal or regulatory obligations, resolve disputes, prevent fraud and abuse, or any other contract entered into between you and us, or if it is not technically feasible to delete your personal information.

Your Information Choices

Opting Out of Communications

We may communicate with you to provide information about our clinical trials or products. You may opt-out of receiving these communications by using one of the following methods:

1. selecting the email “opt-out” or “unsubscribe” link, or following the opt-out instructions included in each email communication;
2. by contacting us by email at [email protected]

Do Not Track

You can opt-out of being targeted by certain third party advertising companies online by visiting the Network Advertising Initiative, Omniture, Aperture, PrivacyChoice, and/or Digital Advertising Alliance.

We currently do not respond to “Do Not Track” browser signals. Accordingly, your navigation on our sites and services may be tracked as part of our efforts to gather user information described above. If you arrive at our sites and services by way of a link from a third-party site that does respond to “Do Not Track” browser signals, such “Do Not Track” browser signal recognition will end as soon as you reach our sites and services.

California Privacy Rights

FOR RESIDENTS OF CALIFORNIA ONLY. Section 1798.83 of the California Civil Code requires select businesses to disclose policies relating to the sharing of certain categories of your personal information with third parties. If you reside in California and you have provided us with your personal information, you may request information about our disclosures of certain categories of your personal information to third parties for direct marketing purposes by contacting us at [email protected]

Nevada Residents

FOR RESIDENTS OF NEVADA ONLY. Under Nevada law, we do not sell your personal information. However, if you are a Nevada resident, you are entitled to submit a request that we not sell any personal information we have collected about you by contacting us as at [email protected].

Children’s and Minor’s Privacy

Children under the age of 18 are not permitted to use our sites and services. We do not knowingly collect personal information from children under the age of 18 or utilize plug-ins or ad networks that collect personal information through child-directed third-party websites or online services. If we learn that we have collected personal information from a child under 18, we will take steps to promptly delete such information.

Our services may allow users above the age of 18 (such as healthcare providers, parents, and guardians) to submit personal information of minors. Such users assume full responsibility over their submission, use, and transmission of such information.

International Users

We are headquartered in the United States. Our sites are hosted and administered in the United States or hosted with cloud service providers who are headquartered in the United States and are intended for users in the United States. If you are located outside the United States, be aware that information you provide to us or that we obtain as a result of your use of our sites may be processed in, transferred to, and stored in the United States and will be subject to United States law. The privacy and data protection laws of the United States may be different from the laws of your country of residence.

By using our sites or providing us with your information, you consent to the transfer of your information to the United States for processing and storage.

Contacting Us

If you have any questions or concerns about this privacy policy or our practices you can contact us on our contact form located on our website or email us at [email protected].  Please be sure to identify the specific site about which you have a question or concern and how we can contact you.

Changes to This Privacy Policy

We may revise this privacy policy from time to time and, if we do, we will update it on this page and modify the “Effective Date” at the top of this privacy policy. If our information practices change in a significant way, we will endeavor to provide you with appropriate notice of the change. Because our privacy policy can change at any time, we encourage you to reread it periodically to see if there have been any changes that affect you. If you disagree with any changes to this privacy policy and do not wish your information to be subject to the revised privacy policy, please discontinue your use of the sites. Your use of our sites following any such change constitutes your agreement that all information collected from or about you through our sites and services after the revised privacy policy is posted will be subject to the terms of the revised privacy policy.